Getting the Facts on Fibromyalgia
The medical community has come a long way in acknowledging the signs and symptoms of a condition now known as fibromyalgia.
I had a friend growing up who suffered from headaches, pain in her arms and legs, fatigue and mild depression. Her parents took her to many different doctors, but nothing seemed to get better. After years of suffering and failed treatment options, she was diagnosed with fibromyalgia.
According to the National Fibromyalgia Foundation, fibromyalgia is considered a syndrome rather than disease. The difference being a disease has a definable cause and recognizable signs and symptoms. A syndrome is a collection of signs and symptoms but the actual cause may not be known. Just because it is classified as a “syndrome” does not and should not minimize or belittle the validity of the condition or diagnosis. People with fibromyalgia have very real symptoms and very real pain, but unfortunately, this syndrome has also a varied degree of treatability.
The characteristics of fibromyalgia include pain on both sides of your body, widespread tender points, fatigue, sleep disruption and possibly psychological distress. In addition, people with this syndrome may also experience headaches, moodiness, anxiety, and irritable bowel syndrome. These individually are common medical conditions, but with fibromyalgia there is not currently a cure for this condition.
It’s been estimated that fibromyalgia affects nearly 6 million people in the United States and women are more likely to be diagnosed than men. While there may not be a cure for these 6 million sufferers, there are a variety of ways to cope with fibromyalgia. First, there are prescription medications that can help with pain management and mood disruption. Second, getting consistent moderate exercise helps to reduce pain and keeps the body healthy. Third, establishing good life habits including getting routine sleep, and eating a healthy diet that is conducive to your body type. Fourth, developing coping strategies for reducing stress and anxiety, which may include taking prescription medication and seeking professional help. Finally, finding a support group or people you can talk to about your needs, feelings and frustrations. The key is to recognize you are not alone and that there are people will and able to help you.
It’s also important for family members to be educated and understanding about the symptoms of someone suffering from fibromyalgia. I think back to my friend who tried to get help from her family and local doctors, but most of the time her symptoms were dismissed or misunderstood. I can’t imagine how frustrating that was for her. Luckily, the medical community has acknowledged that this syndrome is real and is better trained to assist their patients in establishing a treatment plan.
For more information about fibromyalgia visit the National Fibromyalgia
Foundation.
jacky scott
8:51 am on Sunday, February 12, 2012
Can anyone reccomend a fibro doctor in south of scotland?
Mary Lou St Lucas
10:26 am on Sunday, February 12, 2012
Good article. Please continue getting the word out there that fibromyalgia is real (my spell checker just told me it isn't even a word!).
Debbie
12:37 pm on Sunday, February 12, 2012
It is real & I feel bad & in pain everyday & everynite. Can not take pain meds, because if I do, I throw up for hrs. My legs do not function properly any longer & I am most of the time home bound without help in the outer world! I have spent so much money on every test in the world, until it was decided I have severe fibromyalgia. It is a word...I just spelled it wrong writing this comment & it corrected the word! FIbromyalgia is as real as the sun rises each day, the problem is, it's been around for so long... No scientist, doctors, want to admit to it becuz they haven't been in our shoes. Hope my comment helps!
Nicole
11:53 pm on Sunday, February 12, 2012
oh its real all right everyday i wake up in pain i feel like some one has beaten me with a ball bat and my husband can not rub my back anymore because it feels like road rash all over my body i work still as a personal caregiver in a nursing home and let me tell i suffer every day i have to take pain meds to get through my day I have children and feel like im letting them down because after work I am in to much pain to do anything but lay on my couch if anyone has any suggestions on how to cope I am willing to try anything real tired of pain meds in order to function at a lower quility of life. please help Nicole
Tom Yarnall
10:47 am on Monday, February 13, 2012
Nicole, have you tried acupuncture? There is a highly respected MD in Poway who is certified to practice it. If interested, let me know how to contact you and I will give you his name. He is, also, very familiar with fibromyalgia, having successfully diagnosed and treated my wife for it for many years.
Here's what has worked for my wife:
Get the most comfortable mattress you can.
Force yourself to exercise. She does water aerobics regularly for low joint stress.She always feels much better after the class and knows very well when she misses a few..
Take an anti depressant before bedtime to relax your muscles to get a better nights sleep. She takes amitriptyline.
Fibromyalgia is such an insidious disease and treatment is most always trial and error, as you and others know. What works for one is problematic for another. I do believe exercise may be a common thread.
Mary Lou St Lucas
5:55 pm on Monday, February 13, 2012
I agree about exercise, Tom. Very gentle yoga helps for me, but only in 20-30 minute sessions. It definitely took trial and error to figure that out.